These parents who love, hold, hope, cry, fight, fight, fight, and accept when the fight is over. Who hold through seizures, restrain for IV's, challenge the medical field for non-approved treatments, advocate for therapy, demand acknowledgement and refuse second best. These parents who learn to give shots, and suction throats, and feed through tubes, and place catheters. Offering everything they have up to God or the universe just for their kid to have a chance. They face the fight head on without holding anything back.
The precious parents who DO know the fight they are in. The inspiring kids facing huge obstacles while still smiling - not even knowing the fight they are in.īut more so in the parents. In the last six years my life has collided with BRAVE. Facing the rest of your days without a part of your heart.Ĭontinuing to live and continuing to love after your greatest fear has been realized. Choosing to stop the fight because you are placing her needs are above the selfish part of the soul desperate to keep her physically here at any cost.įacing death, facing the end of this part of the journey. So yeah, that might be a better use for the word BRAVE.Ĭhoosing to unhook. They are leaving the hospital so that their sweet June Bug can spend her last moments here on earth surrounded by the people who love her in the comfort of her home.
Today my friends from our support group are taking their precious daughter home from the hospital, and not because she is better. It's such a meaningful word to be used for such a puny act. I can not come up with a justifiable reason to use this word BRAVE in conjunction with any use of technology. What the heck does being brave have to do with buying a tablet?ĭo they mean you have to be BRAVE to buy their products - if so, that's a really odd marketing strategy.ĭo they mean you are BRAVE when you use technology to play video games and peruse social media? God help us if that's the new standard. I'm not a fan of the current Microsoft ad campaign for their new tablet: Play games, touch the screen, surf the web, blah, blah, blah and then they end their commercial with these song lyrics:
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